We agonized back and forth over the decision to make for Maeve. It was difficult because we didn't want to *wait* and miss our window to do the surgery, but also didn't want to rush into something that wasn't right for Maeve. Then we made our trip to St. Louis and met Maeve's surgeon. He was wonderful and had experience with cleft feet. He was very encouraging about the outcome and really put our fears to rest. Obviously, we decided to move forward.
The surgery itself went well. They had to do more bone reconstruction than they were expecting, but hopefully it all prevents her from having to have any future surgeries. Originally when Maeve's casts were removed, Susie and I were taken aback. We knew her feet would not look *normal*, but we found ourselves staring at her feet thinking they looked exactly the same. Funny how not seeing something for 5.5 weeks allows you to forget. At the same time, Maeve was super tentative to walk or bear any weight on her feet. We somewhat expected this, but not to the extent that it occurred. Maeve was in lots of pain for a few days and moderate pain for about a week anytime she attempted to walk. She was back on narcotics for about 5 days. Of course in our minds we were thinking, "she will never walk again and we have forever changed her life!" Thankfully that was not the case and things have slowly returned to normal. Maeve is walking much better--almost pre-surgery-esque and starting to jump and slightly run. She is in zero pain and I think most of her previous pain was probably related to fear and sensitivity rather than actually bone pain.
As we get more used to her new feet, we are very happy with the results. Her feet are actually straight and slide right into shoes. No more squeezing and cramming. She could probably use an entire size smaller in her shoes. She still has clefts in her feet, but they are much smaller and the bases (or rear) of her feet are normal. I think she will be happy with the decision we made.
The important message we would like to get out about this "special need" is that it is completely manageable. The decision to pursue surgery is each individual parent's to make. At one point we were talking with our adoption agency and the rep told us that only one other family has even considered a child with cleft feet since Maeve. They can't get perspective parents to even look at the children's files. I don't get it. This is so easy (really it is!). Aside from this surgery, we don't even think about Maeve's differences. She is such an amazing child and I am so thankful our lives were matched. I hope someone else is out there and maybe reading this post, considering a child with cleft hands and feet. DO IT!
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Pre surgery.
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Post surgery.
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